Epilepsy Warriors Foundation says it is conducting a program called ‘Epilepsy Smart’ aimed at demystifying the condition in the minds of parents, guardians and caregivers.
Director for the Epilepsy Warriors Foundation Samuel Chigamba said: “It is important that people know that epilepsy is not contagious and that anyone at any age can have epilepsy.
“It is also important to know that with medication people with the condition can get better, active and productive lives with the use of anti-epileptic medication.”
According to some of those attending the meetings, they is very little information available on epilepsy and most of the nearest health facilities do not have anti-epileptic medication all the time. Consequently, some parents are forced to walk long distances to Queen Elizabeth Central hospital to access their ward’s anti-epileptic medicines.
Chigamba also observed that said some children with epilepsy fail to take anti-epileptic medication as prescribed by their physician due to ignorance on the part of their parents and/or caregivers; this has led to the worsening of the children’s condition.
Chigamba added that their goal is also to help everyone understand what a seizure is and looks like and what to do if they see a person having a seizure.
“The program is also promoting education, administering proper seizure first aid and is encouraging people not to hide their epilepsy,” he said.
A total of nine parents and community members were oriented on epilepsy in Bangwe, Blantyre.
Epilepsy, a neurological disorder has not received much attention over the years in Malawi.